Tag Archives: adhd

Autism Awareness Month

“April is Autism Awareness month, but every day is Autism Awareness in our home.” This is definitely true.

My youngest daughter Scarlet is 14. She was diagnosed with Autism in 2017. She also has Tourette’s Syndrome, ADHD, Disruptive Mood Deregulation Disorder, and Anxiety. It’s been a very difficult struggle for her on so many levels. It’s also sometimes difficult to pinpoint what is distressing her in particular, since there are so many different symptoms and triggers depending on what is going on.

She has really come to embrace her disabilities, and we have a much better understanding now. I pretty much let Scarlet do whatever she wants to an extent. She’s a good kid, very intelligent, and understanding. She just gets loud and her emotions are extremely heightened. I never yell at her, unless absolutely needed. We have certain code words or things I do to indicate that she is getting out of hand. But that is reserved for when she is screaming or being extremely loud for no reason. When that happens, I yell the word “octavius” and everyone knows it’s time to calm down.

Scarlet’s biggest issue really now is with school. We tried regular school on a few different occasions. Since that didn’t work out very well, we moved on to cyber school a couple years ago. It’s been a bit better, but still not going great.

She gets really overwhelmed easily with school. Last year, she completely shut down and refused to do anything at all. Nothing mattered whatsoever. This year has been a lot better. Scarlet has mandatory live classes that she attends daily. She even participates in class. She gets a decent amount of work done during school. Once in a while, she will need a break. I let her go because of her massive progress she has made already. I don’t want to push her too much and have her shut down all over again.

Her school has her set up in the 504 program with special education. Scarlet is also in a new class where there combine two grades into one. She started with seventh grade and would graduate from eighth. She only has two subjects, with study halls, support sessions, and school therapy. She has difficulty processing things so I sit through each class with her to make sure she is focused and understands. If not, I explain it to her a different way. She made Honor Roll in the first marking period, but failed the second. She has a plan set up to finish out the year in better shape. She will then be in eighth grade, with an opportunity again to graduate ninth by the end of the year.

Other than school, there’s just a few times here and there that there has a major flare up or what we call “episodes”. Regardless, she still gets bouts of massive tics. Whatever she may have going on, she holds it in a bit when we are in public. If I’m with her, she will often hang onto me, sometimes digging her nails into me too. She will especially hold back around certain family members. When that happens, she tends to shake really bad. They don’t believe in disabilities and blame me for Scarlet’s issues. Once she gets home, she lets it all out and it’s usually pretty bad for a little bit.

I hate seeing Scarlet going through so much in general, but I’m very proud of her. She has made incredible progress. She is very open to anyone who wants to know what it’s like to have disabilities and what she experiences on a daily basis. She also loves helping other people who are having issues.

While it’s definitely been difficult for everyone involved, it has also been a positive experience of learning and growing together that has brought us even closer and more in touch with each other. I appreciate that very much.


It’s Been A While

I feel like I’m so very far behind on everything. Not having a laptop for about two weeks definitely set me back quite a bit. I think after that, everything just pretty much snowballed out of control. My last post was on January 8th. I knew it was a while, but didn’t realize it was that long.

I feel like a lot has gone on since then.

To start, a few of our pet rats have found new homes. The remaining ones are getting quite large, especially the boys. The girls haven’t tried to escape lately. I think this last cage repair might have finally did it. If you like, you can follow Malakai_the.rat.king‘s adventures on Instagram.

I haven’t been couponing. I slacked with scanning my receipts. However, I have been ordering lots of freebie items. I am in the process of organizing some upcoming projects, and I’m reevaluating of a lot of things in the financial realm. I’ve also been making some updates to my site.

I have a ginormous list of so many things I want to get done. I know the majority of it will just get bounced around in my head for quite a while. I have trouble remembering, or even retaining a thought process. It’s pretty bad. It doesn’t help that I’ve been out of my ADHD meds for over a week. My OCD doesn’t stand a chance these days.

I just hope to keep up my momentum. At least, things are still getting done.


My Scarlet. Always Sharing, Helping

Very few know this, but my youngest daughter suffers from a few disabilities. I belong to several Facebook groups relating to Autism, Tourette’s, Children with Disabilities, and so on. I like to read through the posts and think about how it relates or not. On a very slim occasion, I will comment with some of our own experiences. I say slim because I rarely post or comment on anything to begin with, let alone a stranger’s post in a public group. Not to mention, while they may be reaching out, they may not care what I have to say.

I keep to myself about a lot of things, especially with how the world is today. But I really wouldn’t mind sharing our experiences or any suggestions, if it will help anyone else. My daughter also feels the same way. We’ve talked about it often and she loves to help others. With that said, I’ll give you a little bit of her background.

My daughter Scarlet is 13 years old. She had a seizure right before her first birthday. She’s had asthma and allergies for most of her life, along with severe eye problems and trouble walking. Several years ago, she was diagnosed with Disruptive Mood Dysregulation Disorder. They later said she had Autism and referred us to a Neurologist, who then confirmed her diagnosis for Tourette’s. She has since been diagnosed with Depression and ADHD.

Scarlet has been through a lot of medications, doctors, therapists, coping skills, emotions, and broken items. It’s been a long and windy road. There is still the occasional meltdown along with bouts of severe tics, but we manage it a lot better. Some of those meltdowns have been my own, wishing I could do better and do more to help her.

That’s just a few tidbits. Since I know Scar is comfortable with it, I think I might share a bit more about our experiences here. Maybe some coping skills we have learned, adventures we end up on, symptoms, silly moments, and so on. I might add some of her art as well. She loves to paint. It helps her a lot. She has a lot of great qualities and is full of so much love. She is my Sunshine.

Always Rearranging

I am always rearranging everything. Physical things around me, my site, social accounts, spreadsheets, and so on. (Even my life has changed so many times, but that’s a post for another day.) It doesn’t help that my ADHD and OCD constantly battle each other. Then add my memory loss, among other things. It’s out of control.

I rearrange drawers, cabinets, paperwork, nick nacks, and anything that isn’t bolted down. My family often gets mad at me for this. They can’t find the things that were there before. I always justify that it’s in such a better spot now. Then I sometimes forget where I moved them to.

I reorganize my spreadsheets before I complete the tasks that they were created for. I have a budget spreadsheet that has morphed so many times. I also have several test budget spreadsheets that never went much further than that. I often get so heavily involved in a sheet, then get sidetracked. A lot of times, I forget that I created them and what my intentions were.

I rearrange my site to better organize it so it flows and looks cleaner. I’m always trying it out this way or that way. Then a week later, I learn something and try to implement it. At some point later, I decide to change something else. Then I’m looking at different themes. During all of this, I think that no one will probably even notice the changes. I’m also not posting as much while this is happening because I get so overly involved with the layout. (By the way, I’m about to change the home page….I think.)

So with all that said, please forgive me for constantly moving things.
I’m really not trying to annoy anyone.