Tag Archives: disabilities

All, Awareness, Random

IEP Advice

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I’ve been reading a lot about people having issues with this recently. So here’s my advice, as I literally just went through this.

*** If you have an IEP for your child, make sure the school is adhering to it. If not, call a meeting to address it right away. Make requests even if you think they’ll say no. They have to accommodate your child within reason. Always push for whatever your child needs to have the best learning experience possible. ***

I’ve had an IEP for Scarlet for several years. She is autistic with Tourettes, DMDD, ADHD, anxiety, and more. At her own enthusiastic and long thought out request, I switched her from five years of specialized online school to in person learning this year. However, the first day was entirely too overwhelming for her. As much as she wanted to do it, she only made it a few hours, and didn’t return for a week. In the meantime, I requested partial online, part in person learning with shorter days, plus a few other accommodations. They took the day to review it with the director since they don’t do this for anyone else. They approved all of it!!! As she gets more comfortable, or if it doesn’t work out, we can make further adjustments. She went back to school yesterday and loved it!

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All, Awareness

My Scarlet. Always Sharing, Helping

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Very few know this, but my youngest daughter suffers from a few disabilities. I belong to several Facebook groups relating to Autism, Tourette’s, Children with Disabilities, and so on. I like to read through the posts and think about how it relates or not. On a very slim occasion, I will comment with some of our own experiences. I say slim because I rarely post or comment on anything to begin with, let alone a stranger’s post in a public group. Not to mention, while they may be reaching out, they may not care what I have to say.

I keep to myself about a lot of things, especially with how the world is today. But I really wouldn’t mind sharing our experiences or any suggestions, if it will help anyone else. My daughter also feels the same way. We’ve talked about it often and she loves to help others. With that said, I’ll give you a little bit of her background.

My daughter Scarlet is 13 years old. She had a seizure right before her first birthday. She’s had asthma and allergies for most of her life, along with severe eye problems and trouble walking. Several years ago, she was diagnosed with Disruptive Mood Dysregulation Disorder. They later said she had Autism and referred us to a Neurologist, who then confirmed her diagnosis for Tourette’s. She has since been diagnosed with Depression and ADHD.

Scarlet has been through a lot of medications, doctors, therapists, coping skills, emotions, and broken items. It’s been a long and windy road. There is still the occasional meltdown along with bouts of severe tics, but we manage it a lot better. Some of those meltdowns have been my own, wishing I could do better and do more to help her.

That’s just a few tidbits. Since I know Scar is comfortable with it, I think I might share a bit more about our experiences here. Maybe some coping skills we have learned, adventures we end up on, symptoms, silly moments, and so on. I might add some of her art as well. She loves to paint. It helps her a lot. She has a lot of great qualities and is full of so much love. She is my Sunshine.

All, LadySkullshine

Who Is LadySkullshine?

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Since I have an About Me section, I didn’t intend to write this post. However, I signed up to learn more about blogging and my first task was to do this. So, who am I and why am I here?

For those who have no idea who I am, I’m LadySkullshine.

I suppose a good way to start is to tell you to google my alt name and you’ll find a whole lot of my work from over the years. I feel like that’s actually pretty cool for me to be able to say. The name originated around 2010 and came out of brainstorming with a few others. At the time, it was perfect for what I was doing. I had been recently unemployed, which created an opportunity to learn a few things and volunteer my time helping out local businesses, the local metal community, and a few things outside of that. I did a ton of promoting and photography. That was my original primary focus. From there, I began to take on a bit much but still persisted. I had managed a couple bands, did some modelling, a ton more photography, ticket and merchandise sales, announcing at music awards, made shirts and hoodies in my home once, and a few more things that had gone on for quite a few years.

It started to die down slightly when I got back to working but I insisted on continuing to help out wherever I could. When my time with family was compromised, I had to end most of it. My babygirls are my life and they always come 1st. The last thing I really did was star in a my friend’s horror movie with my oldest daughter a few years ago. You can actually find us on IMDb, which is also pretty cool.

Over these long years, my site has been restructured several times as far as content. In an effort to hang on to the history of my site and of course to showcase my past work, I have saved some of the old LadySkullshine in a separate archival section. The rest of my site has shifted focus on awareness of several disabilities that affect my life in one way or another, saving money any way possible, Numismatics, along with anything else I decide to add along the way.

Now that I have gone through the process of writing this, I’m remembering things and realize there is a lot more to my history that is actually very interesting. I may continue this post with more details at a later time.

Stay Tuned For More LadySkullshine!

Thank you!