Category Archives: scarlet

Tourette’s: Scarlet’s Vocal Tics

I previously wrote about my 13 year old daughter, in My Scarlet Always Sharing. Several years ago, she had been diagnosed with Disruptive Mood Dysregulation Disorder, Autism, Tourette’s, Depression, and ADHD. Scarlet is all about awareness, sharing her experiences and feelings, and helping others. We chatted about this multiple times, so I will start a new section for her shortly.

Today, I wanted to share an audio clip that Scarlet recently posted on her Instagram. (Don’t have your speaker volume too high when you listen to it.) She wants others to know what it’s like when she has vocal tics. She described it in her own post as “VOCAL TICS: Tic attacks can last for a few seconds to sometimes minutes. They are extremely tiring and sometimes hurt if physical. #tourettesawareness”.

What you will hear is just one of a series of vocal tics that Scar experiences. She sometimes will scream, make loud noises, or shout words repeatedly. This happens several times a day, along with her physical tics. Those may include clapping, hitting things or herself. These tics can be especially tiring and painful for her. It’s sometimes difficult to differentiate what is happening. I can tell for the most part if she is okay, or if I need to check in on her. But when I’m not sure and she is irritated, I run the risk of escalating things even further. I try to approach everything lightly, meanwhile I’m a mess inside. I’m always worried about my baby and how everything affects her. It’s my job to make her environment the best I possibly can.

Here is the audio clip I mentioned. Again, don’t have your speakers too loud.

Scarlet’s Dark Art

So my friend invited us to her “Dark Art” event, benefiting Glaucoma research. The idea was to paint as though you are blind, using unknown colors and items to paint with. It was this past Sunday, but we weren’t able to attend. I thought it would be nice for my daughter Scarlet to still participate from home. When I told her, she was really excited about doing this. Scarlet loves to paint and loves to help others with awareness. So it was right up her alley.

Once I had everything in the area covered, we got started. I blind folded Scarlet and gave her a few random items. I wasn’t sure what she could really use but I grabbed a pencil, a straw, some cotton balls, q-tips, and a plastic paint tool. I picked out pink, purple, yellow, and pearl paint colors. Then got my camera ready to record and take pictures, of course.

She started off with the cotton balls for the sky. At one point, she turned the canvas sideways without realizing it. Part way through, we had to pause filming. There was way too much paint all over her hands, so I had to run to get wet wipes. Her eyes stayed covered the whole time. I even called her out at one point just to make sure. Later in the video, she reached back for a wet wipe and I yelled “Don’t touch me!” lol.

It was very messy, but she had a lot of fun. We will most likely do this or something like it again. For the event, my friends had to paint for an hour and a half. Scarlet painted for a lot less than than that. We got about six minutes recorded and lots of pictures. Ignore the part where I fall through Scarlet’s hamper LMAO.

My Scarlet. Always Sharing, Helping

Very few know this, but my youngest daughter suffers from a few disabilities. I belong to several Facebook groups relating to Autism, Tourette’s, Children with Disabilities, and so on. I like to read through the posts and think about how it relates or not. On a very slim occasion, I will comment with some of our own experiences. I say slim because I rarely post or comment on anything to begin with, let alone a stranger’s post in a public group. Not to mention, while they may be reaching out, they may not care what I have to say.

I keep to myself about a lot of things, especially with how the world is today. But I really wouldn’t mind sharing our experiences or any suggestions, if it will help anyone else. My daughter also feels the same way. We’ve talked about it often and she loves to help others. With that said, I’ll give you a little bit of her background.

My daughter Scarlet is 13 years old. She had a seizure right before her first birthday. She’s had asthma and allergies for most of her life, along with severe eye problems and trouble walking. Several years ago, she was diagnosed with Disruptive Mood Dysregulation Disorder. They later said she had Autism and referred us to a Neurologist, who then confirmed her diagnosis for Tourette’s. She has since been diagnosed with Depression and ADHD.

Scarlet has been through a lot of medications, doctors, therapists, coping skills, emotions, and broken items. It’s been a long and windy road. There is still the occasional meltdown along with bouts of severe tics, but we manage it a lot better. Some of those meltdowns have been my own, wishing I could do better and do more to help her.

That’s just a few tidbits. Since I know Scar is comfortable with it, I think I might share a bit more about our experiences here. Maybe some coping skills we have learned, adventures we end up on, symptoms, silly moments, and so on. I might add some of her art as well. She loves to paint. It helps her a lot. She has a lot of great qualities and is full of so much love. She is my Sunshine.